Patient/Public Advisors for Injury Research (PAIR) is our main PPI group for informing C4TS led research 

Background

Patient experience and perspectives are crucial for helping guide research, and patients play an important part in the translation and dissemination of findings.  

To this end, C4TS established PAIR in 2014, which started off as a six member group of patients and the public who met to guide the design of follow-on studies after our pilot study of cryoprecipitate in trauma haemorrhage. Bleeding accounts for 40% of all injury related deaths and improved understanding of transfusion practice for trauma haemorrhage, has the potential to save many more lives.

The group has since expanded with members from the AfterTrauma community, former Royal London Hospital Major Trauma Centre patients, and NHS Blood & Transplant (NHSBT) patient groups.

PAIR meets on an ad hoc basis as required at the Blizard Institute in London, and is in regular contact with researchers via email. 

PAIR continues to grow and our priority for 2018 is to expand PAIR into a network of patients and interested members of the public to inform C4TS' wider research agenda and clinical trials.  

PAIR activities

PAIR members have a wide range of responsibilities, including to:

  • identify research priorities
  • ensure C4TS study protocols are designed to measure outcomes considered important to patients and the public
  • provide feedback on the consent process for patient recruitment
  • contribute to and review grant applications, including producing plain English summaries
  • assist in writing some study materials eg Patient Information Sheets
  • enable patient/public membership of the Trial Steering Committee (supported by appropriate training)
  • provide input into the costing of patient involvement in projects
  • aid dissemination of information during studies, eg patient newsletters or blogs, website content
  • collaborate with us in sharing the results of studies more widely eg via social media and patient forums
  • ensure the findings are implemented into NHS trauma care practice through representing patient views in guidelines development 

How to get involved

We are always looking for more patients and interested members of the public to help us with our research. If you would like to join PAIR, or just want more information, please contact our Communications Officer Nicole Skeltys.

Our next PAIR event will be held on Sept 11 2018, with presentations from C4TS researchers, and patients talking about the benefits of being involved in research.  There will also be stalls from Barts Charity and AfterTrauma, and our interactive games will be on display. The event will wind up over drinks and nibbles. All welcome, more info and RSVP here!

 

Join us!

Check out our guide to getting involved with our research, plus we have some easy to understand leaflets about what we do here. Interested in helping us? We'd love to hear from you!

 

Public event 11th Sept 2018

Our next public event will be held on Sept 11 2018, with presentations from C4TS researchers, and patients talking about the benefits of being involved in research.  There will also be stalls from Barts Charity and AfterTrauma, and our interactive games will be on display. The event will wind up over drinks and nibbles. All welcome, more info and RSVP here!

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