Patient/Public Advisors for Injury Research (PAIR) is our main Patient Public Involvement group for informing C4TS-led research
Background
Patient experience and perspectives are crucial for helping guide research, and patients play an important part in steering research and sharing the results.
C4TS established PAIR in 2014 to guide the design of follow-on studies after our pilot study of cryoprecipitate (CRYOSTAT1) in trauma haemorrhage. Since then, the group has discussed a range of projects and shared their thoughts with researchers exploring issues including; blood clotting, new transfusions and the importance of diversity in research.
The group has since expanded with members from the AfterTrauma community, former Royal London Hospital Major Trauma Centre patients, and NHS Blood & Transplant (NHSBT) patient groups.
PAIR meets on an ad hoc basis as required online or in person at the Blizard Institute in London.
What does PAIR do?
Members of the group meet with researchers and doctors to hear about current or proposed research. They then work together to inform all stages of the research process.
The group will:
- feedback on the consent process for people joining studies
- contribute to and review grant applications
- assist in writing Patient Information leaflets
- have opportunities to join Trial Steering Committees
- provide input into the costing of patient involvement in projects
- aid dissemination of information about studies
How to get involved
Find out about current projects by reading the PAIR newsletter. We are always looking for patients and interested members of the public to help us with our research. If you would like to join PAIR or would like more information about C4TS and our work, please contact the Centre.
